umfanekiso wefreyimu
Ukugqalwa kwesiza

Ingxelo yenkqubela phambili kwiminyaka emibini yokuphunyezwa kwesicwangciso-qhinga sesizwe se-autism kwiingxaki ze-neurodevelopmental disorders [AA_OrgIntl_ONU-CDPH]

Inqaku elihambelanayo - IQela eliSebenzayo elihambelanayo

Lo mbhalo ucetyiswa ukuba uhlalutye ngaphakathi kwesakhelo se Ingxelo ye-Autist Alliance kwiKomiti ye-CDPH kuRhulumente waseFrance.
Ukuba ungathanda ukunika amagqabantshintshi aluncedo kule ngxelo, cofa kwi-disc eluhlaza (okanye uye emazantsi ephepha) ukufumana imiyalelo yendlela omawuqhubeke ngayo.


Ingxelo yenkqubela phambili kwiminyaka emibini yokuphunyezwa kweqhinga lesizwe le-autism kukuphazamiseka kwengqondo (Urhulumente, France, 28/09/2020)

Umthombo (PDF ngemizobo): https://handicap.gouv.fr/IMG/pdf/bilan_autisme_2_ans_2020.pdf

Umthombo (isicatshulwa esicacileyo): https://handicap.gouv.fr/IMG/docx/bilan_autisme_2_ans_2020__word.docx

Uxwebhu lokuGunyaziswa kwamaZwe ngamaQela kwiSicwangciso-qhinga sikaZwelonke seAustism kwiiNeurodevelopmental Disorders

INDLELA Yintoni etshintshileyo? - Uphengululo lweminyaka emibini yokuphunyezwa kwesicwangciso sesizwe se-autism kukuphazamiseka kwengqondo - SEPTEMBRE 2020



UKUHLELA
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Ukudibanisa ukungxamiseka kunye nexesha elide, nantsi eyona nto ingumceli mngeni omkhulu ekuphumezeni i-autism yesizwe kunye neqhinga le-neurodevelopmental yeqhinga: ungalahli umbono wobomi bemihla ngemihla babantu abanengxaki yokuphazamiseka kwengqondo ye-autism (ASD) kunye nokuphazamiseka kwengqondo kwi-neurodevelopmental (TND), babonelele ngeempendulo zalapha nangoku kwaye kwangaxeshanye babumba nzulu kwaye bomelele umbutho kunye nokuziphatha kwabo bonke abachaphazelekayo.

Yile nto sisebenza kuyo yonke imihla: ukuphunyezwa ngaphezulu kweminyaka emibini ngoku ukuzibophelela ezintlanu kwesicwangciso-qhinga se-TSA-TND sesele sikwazile ukwenza oku kuba inzululwazi isembindini wesenzo sethu kunye nolwakhiwo lweendlela zethu. ukwenza ; iingcali zezempilo zichonga abantwana kwangoko kwaye zinezixhobo zokubonelela ngenkxaso ehlengahlengiswe kwiiprofayili kunye neemfuno zabo; sisikolo sonke esiguquliweyo nesiguqukayo kwimbono ebandakanya bonke ngakumbi ngaphaya kwamalungiselelo kunye neendlela ezithile zokwamkela; Ukuchongwa kwabantu abadala abane-autistic kunye nomsebenzi owenziweyo kweli cala kukhokelela ekubuzeni ikhosi yonke kunye neendlela zenkxaso, kubandakanya amayeza.

Ukhetho oluntsonkothileyo nolungaqondakaliyo ngamanye amaxesha lomgaqo-nkqubo odibanisa udidi ngokubanzi lweengxaki ze-neurodevelopmental luvumele uninzi lwenkqubela phambili ngokubhekisele kubulungisa kubantu abasuka kwezi ngxaki kodwa nakwindlela efanelekileyo yonyango. umgaqo-nkqubo wethu woluntu. Le nkqubela phambili ibalulekileyo kufuneka iqhubeke kwaye iphuhlise kwiminyaka ezayo.

Ukuphumeza le mishini, i-Interministerial Delegation yenza ukhetho lokulawula rhoqo kunye nokufuna ngenkani ngokusekwa kwamaqumrhu amabini asebenzayo kunye nolawulo lwezopolitiko abandakanya bonke abachaphazelekayo: abantu abachaphazelekayo, iintsapho zabo, imibutho. , iingcali, amaqabane eziko, ulawulo lukazwelonke nolweendawo, imibutho yophando, njl. Olu lwakhiwo lusisigxina luqinisa umsebenzi wethu kwaye sibonise ngemirhumo exabisekileyo.

Kwangokunjalo, ulawulo lwesicwangciso kwinqanaba lommandla lwenziwe ukuba lwabiwe ziiarhente zempilo zengingqi zemfuno yokwahluka kwesicwangciso sobuchule, ngokuchongwa kwe-autism kunye neereferensi ze-TND kwiarhente nganye. kunye nomnqweno wokuhamba kude kwimisebenzi yesilo phakathi kwamacandelo ezempilo kunye namayeza nezentlalo.

Kuyavunywa, iminyaka emibini ayonelanga ukulinganisa ngokupheleleyo impumelelo yesicwangciso esisekwe iminyaka emihlanu, sisazi ukuba ingxaki yezempilo yasinyanzela kwi-2020 ukuba sihlengahlengise isenzo sethu, ngamanye amaxesha simise ukuphunyezwa kwamanyathelo athile. Kodwa ngeli thuba, i-Delegation yakwazi ukulinganisa ukuqina kobambiswano olwakhiwe nemibutho, oososayensi kunye neeklinikhi, kunye nabaqhubi. Umbutho wonke uguqulwe ukuba uphendule ngendlela ekhawulezileyo "ngendlela engxamisekileyo" kwiingxaki ekuhlangatyezwane nazo. Ingxaki yezempilo ngamanye amaxesha iya kuba sisantya sezinto ezintsha kunye nolwazi oluza kuhlala lukho.

Le minyaka mibini, nangona kunjalo, iyasivumela ukuba silinganise ngenani nangokwezimali ukusebenza kwayo. Bakwenze ukuba babenakho ukuqonda isiphumo sokukhawulezisa kutshintsho lwesithembiso kubantu kunye neentsapho kwaye banokuchonga amanyathelo ongezelelweyo abonakala eyimfuneko. Uhlengahlengiso kwisicwangciso-qhinga ngokubhekisele kubantu abadala abane-autism kwiimeko ezinzima ngumzekelo ophambili, ukhumbula ukuba amanye amanyathelo ngoku axhasa isenzo soGunyaziso kwisibophelelo ngasinye.

Ubukho bomgaqo-nkqubo wesizwe kwicandelo le-autism kunye ne-TND, eyakhiwe kunye nokwala kwinqanaba lomhlaba ngokwalo isiqinisekiso sokuvumela wonke umntu ukuba axhamle kwezona ndlela zongenelelo zifanelekileyo. Esi sicwangciso ngoku singumlinganiso wabadlali belizwe nakwimimandla: kwi-axis nganye yomgaqo-nkqubo woluntu, ibeka isakhelo somsebenzi, iinjongo ekufuneka zifezekisiwe, kwaye ichaze abaqhubi beenqwelomoya. Ikwasebenza njengesalathiso ngengqondo yokuba izindululo zenkqubo elungileyo ziziseko kwaye zondla ngokuqinileyo ezinye izembe.

Kodwa siyazi ukuba ukungalingani okunamandla, ngakumbi ngokubhekisele kumgangatho wongenelelo, kuhlala kumhlaba wesizwe. Sikhethe ke ngoko ukungenisa kubemi beli ngokujonga kulo nyaka ngamnye ngokubonisana noluntu ngokusebenza kwalo mgaqo-nkqubo, ngokubuza ngqo abantu kunye neentsapho ezichaphazelekayo ngokufunda 'ifuthe.

Iziphumo zale barometer yokuqala ziqinisekisa ukhetho olwenziwe namhlanje entliziyweni yesi sicwangciso-qhinga sesizwe, ngakumbi:

  • kugxilwe ngamandla ekudalweni kokubhaqwa kunye namaqonga ongenelelo kwangoko ukuze asebenze kwangoko;
  • inkxaso yemfundo yabantwana abane-autistic;
  • ukuthunyelwa kwenkxaso yenkonzo yenkxaso kubantu abadala be-autistic.

Kodwa ezi zenzo ziphantsi kophuhliso akufuneki zisenze silibale ubunzima obuninzi kakhulu ekuhlangatyezwane nabo ngabantu kunye neentsapho, ngakumbi ngezifundo zobomi ezinesiphithiphithi, ukungabikho kwezisombululo zenkxaso, kunye nokufikelela okuncinci. kwingqesho kunye nokuzahlula kwabantu abadala abane-autism.

Buyela embindini, kusekho imiceli mngeni emininzi yokuguqula uluntu ngokuzinzileyo kunye nomgaqo-nkqubo woluntu kwinkonzo yabantu kunye neentsapho ezichaphazeleka kwezi ngxaki ziphazamisayo. Abathunywa abaphetheyo kunye nalo lonke ulawulo lwamaqabane basebenza koku yonke imihla.

Uluntu olubandakanyayo esilakhela bonke abantu abakhubazekileyo lunokuba sisiqhamo kuphela sokuhlanganisa bonke abantu eluntwini. Kule minyaka mibini idlulileyo, siqalise utshintsho olukhulu.

USophie Cluzel, Nobhala Welizwe Wabantu Abakhubazekileyo

UClaire Compagnon, umthunywa welizwe


Oko abantu kunye neentsapho zisixelela kona ngobomi babo
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Abantu abayi-12 kunye neentsapho ezichaphazeleka yi-autism, ukuphazamiseka kwe-DYS, ukukhubazeka kwengqondo, ukungahambi kakuhle kwengqwalaselo kunye okanye ngaphandle kwe-hyperactivity (ADHD) echazwe kwikhosi yabo yobomi kuphononongo olwenziwe yi-Interministerial Delegation kunye nabameli bemibutho.

Olu phononongo, olwenziwe yi-Ipsos ngo-Novemba nango-Disemba ka-2019, luqinisekisa ukuba abaphulaphuli besicwangciso-qhinga sesizwe babone inxenye enkulu yeenguqu ekuza kuxoxwa ngazo apha. Ikwaqaqambisa ubunzima obuqhubekayo bokuhlangana nabantu kunye neentsapho ezichaphazelekayo:

  • xhasa izisombululo ezingasoloko zifumaneka;
  • kusenzima ukufikelela kwingqesho: i-53% yabo bangaphezulu kwe-18 banomsebenzi wobuchule;
  • Ukufikelela kumalungelo e-MDPH kusenzima: i-35% yabazali khange baye kwi-MDPH kuba babhengeze ukuba abanasibindi sokuthatha eli nyathelo, kwaye abaphumelelanga ukugcwalisa ifayile okanye ukungazi i-MDPH. Bayi-56% phakathi kwabantu abadala;
  • ukusilela ukuthathela ingqalelo izinto ezithile zabantwana ngexesha elongezelelweyo ngaphezulu kwesiqingatha sabo;
  • ukwahlulwa kwabantu abadala;
  • ukungabikho kwezindlu ezibandakanya bonke abantu.

Fumana zonke iziphumo kwi:

https://handicap.gouv.fr/IMG/pdf/etude_ipsos_tnd_2020-3.pdf


Intetho kaMongameli weRiphabhlikhi u-Emmanuel Macron, nge-6 kaJulayi 2017, ngokusungulwa konxibelelwano e-Elysée
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“Sisenamatyala amaninzi kakhulu ashiyekileyo ngaphandle kwezisombululo okanye kwiindawo zoluntu ezingaboniyo. […] Ndicinga ukuba ezi nyanga zintandathu zilandelayo zinikezelwe kwindlela enqamlezileyo eqala emazantsi endaweni yesicwangciso esichaziweyo ngasentla, esiqulathe ukunika iimpendulo kunye neentsapho zezisombululo kumatyala awohlukeneyo ukubanjwa, kubonakala kum kubaluleke kakhulu. "


Imihla emithathu ephambili
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July 6 2017

UMongameli weRiphabhlikhi ubhengeze ukusekwa kothethathethwano lwesikali esingalinganiyo. Umsebenzi onamandla wokusebenza kuyo yonke imimandla wenze ukuba kuqinisekiswe umba ophambili wezempilo woluntu we-autism kunye nokuphazamiseka kwengqondo kwi-neurodevelopmental (TND).

April 6 2018

Emva kweenyanga ezisithoba zokubonisana, uRhulumente wazisa ngesicwangciso-qhinga sesizwe se-autism ngaphakathi kokuphazamiseka kwengqondo. Esi sisicwangciso sehlabathi esidibanisa imimandla eyahlukeneyo yongenelelo (ukuchonga, ukuhluza kunye nokungenelela kwangethuba, ukufundwa, inkxaso yezonyango kwezentlalo, umbutho wezononophelo, inkxaso yabanonopheli, ukubandakanywa kwabantu abadala ezindlwini nakwezengqesho, njl.) ngokuthanda abantu kunye nabo babakhathaleleyo. Ikwaquka amanyathelo okuxhasa uphuhliso lomgaqo-nkqubo wophando.

April 27 2018

Igqiza labaphathiswa, elijongene nokuqinisekisa ukulawulwa nokuphunyezwa kwalo mgaqo-nkqubo omtsha woluntu, wadalwa ngenjongo yokuseka iqela elixineneyo, elijongene nolungelelwaniso lwamasebe, iiarhente kunye nabachaphazelekayo. Umsebenzi wayo kule minyaka mibini idlulileyo ibikukuvelisa nokukhawulezisa ukuveliswa kwamanyathelo acwangcisiweyo ngokwolwazi, ukuxhasa ngemali kunye nolwakhiwo lweendlela zabantu.

Isebenza ngokubambisana kwaye ixhomekeke kwizakhono kunye nokuthunyelwa kwamanye amaziko achaphazelekayo kulo mgaqo-nkqubo woluntu ukubenza bakwazi ukunyusa nokukhawulezisa ukudala zonke iimpendulo ezamkelwe ngokomgaqo-nkqubo we-autism kunye ukuphazamiseka kwengqondo.



IXABISO 1 - Beka isayensi emva entliziyweni yomgaqo-nkqubo woluntu ngokunika iFransi uphando olugqwesileyo
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Ubungqina bukaNjingalwazi Thomas Bourgeron ecaphula uClaude Bernard ngexesha lokunikezelwa kwemisebenzi yakhe yemfuza e-Institut Pasteur, kubaqhubi beenqwelomoya beqhinga le-autism-TND ngoJanuwari 30, 2020.

“Yile nto sicinga ukuba sele siyazi ukuba isenza singafundi. "


Uphando ngoku lunendlela yokukhawulezisa umbulelo ekudalweni kweqela lenzululwazi (i-GIS) kunye nokuchongwa kwamaziko amahlanu ophando olugqwesileyo.
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Isicwangciso-qhinga sesizwe senze ukuba uluntu lwenzululwazi lwe-TSATND luzicwangcise kwaye luzilungiselele ngokwalo malunga ne-GIS yokunxibelelana nophando kunye nokuququzelela ukwabiwa kunye nokusebenzisana kwedatha.

Ngokuzibophelela kwe-Inserm, i-CNRS, i-CEA, kunye ne-Inra, i-GIS sele iyasebenza. Ibandakanya phantse amaqela angama-60 ophando, ahlelwe kwimixholo emine ephambili:

  • Ixesha lokuzalwa komntwana kunye nokukhulelwa kwangaphambili-ukuhlangana kwendalo kwimeko-bume: ukusebenzisa iintsana ezingaphambi kwexesha njengemodeli, ukucacisa indima yendalo esingqongileyo kunye neendlela zeemolekyuli ezikhokelela kwi-pathophysiology ye-autism kunye nezinye iingxaki ze-neurodevelopmental.
  • Uphuhliso lwee-trajectories-ukuhlola okusebenzayo kwe-neuro kunye nokunxibelelana kwe-bioclinical: kuchonga ii-biomarkers ezibonisa iindlela zomzimba zokuphazamiseka kwengqondo, ngakumbi ebantwaneni.
  • Indaleko yokuzivelela kwezinto ukusuka ebusheni ukuya ebuntombini: ukuqonda okungcono kokuphazamiseka kwengqondo kwi-neurodevelopmental kwinqanaba lokufikisa-ixesha lokuba sesichengeni okuphezulu okubonakaliswa lutshintsho olukhulu lobuchopho kunye notshintsho olunobunzima kubudlelwane nemo engqongileyo.
  • Ukuphazamiseka kwembonakalo ye-Autism ebudaleni: ukuqonda ngcono imifanekiso yeklinikhi, unyango kunye neekomorbidities zengqondo ukuze kuphuhliswe izixhobo zokuqonda isifo kunye neendlela ezintsha zonyango.

Ukudalwa kwebhunga lezesayensi lehlabathi kwi-GIS Autism kunye ne-TND
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Iindawo zobungcali

UEric Courchesne, TSA

UMarc Abramowicz, ukukhubazeka kwengqondo

UPeter Bearman, uLuntu kunye ne-TSA

ICornelius Gross, ukudumba kunye ne-TND

URenzo Guerrini, i-Genetics, i-Epilepsies

UAmanda Kirby, iiSayensi zezeMfundo, i-DYS, ukuphazamiseka kweemoto

U-Eva Loth, Psychology, TSA

IArmin Raznahan, STIC, kunye neBioinformatics Imaging

UJeanette Schaeffer, ukuphazamiseka kolwimi, i-DYS

UKristiina Tammimies, TSA, TDAH, DYS


Inethiwekhi yophando kunye nokudityaniswa kwamaqela amatsha
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Ngomhla kaFebruwari 25, 2020, i-GIS yaphehlelela umnxeba kumaqela afakwe ilebhile aqhuba uphando kwicandelo le-autism kunye ne-TND, onke amacandelo oluleko edibeneyo, ukujoyina inethiwekhi yophando. Ukusukela nge-16 ka-Epreli 2020, ngamaqela amatsha ophando angama-19 asabele esi simemo, abonisa inkuthazo yoluntu lwenzululwazi oluchaphazelekayo ukujoyina indlela yeGIS.

Phakathi kwala maqela, i-16 iqhuba uphando kwicandelo le-NDT ngaphandle kwe-autism: ingxaki yokunqongophala kwengqwalaselo kunye okanye ngaphandle kwe-hyperactivity (ADHD), ukukhubazeka kwengqondo, ukuphazamiseka kwe-DYS, njl. Amaqela amane aqhuba iiprojekthi kwisayensi yoluntu nakwintlalo, ebonisa ukuvulwa kwe-GIS kwicandelo loluleko elincedisayo. Le fowuni ihlala ivulekile ngalo lonke ixesha kwaye kufuneka ivumele ukudityaniswa kwamaqela amatsha ukuze kwandiswe ngakumbi iinkalo zobungcali.


Oopopayi kwindawo yoluntu lwenzululwazi: ukukhuthaza ukutshintshiselana kwamanye amazwe eFrance nakwamanye amazwe
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Ukuze kukhuthazwe intsebenziswano yenzululwazi, i-GIS isungule nge-6 ka-Matshi 2020 ifuna ukubonakaliswa komdla (i-AMI) ukubonelela ngenkxaso yemali kumanyathelo akhuthaza ukusebenzisana kwamazwe amaninzi:

- inkxaso yezenzo ezinqamlezileyo zamaqela ophando;

-Inkxaso yeeprojekthi zokuhamba zabaphandi abancinci: phakathi kwamaqela e-GIS kunye / okanye aphesheya.

Ubungqina bomphandi

"Ngokusekwa kweqela lezenzululwazi, ekugqibeleni siya kuba neendlela zokusebenzisana, ukudibana kunye nokuthelekisa umsebenzi wethu, kunye nokukhuthaza umgaqo-nkqubo wobunzululwazi obumbeneyo kwinqanaba lesizwe. "

Ukunika uphando ngeendlela zokukhawulezisa oko kukhokelele ekudalweni kwamaziko amahlanu ophando olugqwesileyo. Abathathu baqeshwa ngo-2019, abanye ababini baya kuqeshwa ngoSeptemba 2020. Amaziko amathathu ngala:

  • IZiko leLe «lokuGqwesa le-Autism kunye ne-Neurodevelopmental Disorder» (CeAND), iqhutywa siSibhedlele iYunivesithi yaseMontpellier yaza yaququzelelwa nguNjing.Amaria Baghdadli. Izisa iYunivesithi yaseMontpellier, amaqela eeklinikhi ali-19 avela kwi-CHU (kubandakanya amaziko amathandathu ekubhekiswa kuwo okanye ubuchule kwi-TND), amaqela ophando aqinisekisiweyo ali-19 kunye nekomiti yeenqobo ezisesikweni kunye neYunivesithi uPaul Valéry yobungcali isayensi yezentlalo kunye nokuziphatha. Eli qela libonelela ngobunzima obukhulu beeklinikhi kunye nabaphandi abayi-150 abaqinisekisa ukubonakala kunye nokhuphiswano kwinqanaba lamazwe aphesheya ngamava amiselweyo okuseta kunye nokubeka iliso kumaqela e-epidemiological abantu abanesifo sengqondo (ELENA, EPITED, EFAAR ).

  • L '«UkuTshatshela kwiZiko le-Autism» (i-Exac-T) iqhutywa yi-CHRU de Tours, ilungu lothungelwano lwe-Hugo (izibhedlele zeDyunivesithi yommandla we-Grand Ouest) eziququzelelwa nguNjingalwazi Frédérique Bonnet-Brilhault.

Iinjongo zayo: ukumanyanisa iminyaka engama-50 yobungcali obuvunyiweyo, isibhedlele saseyunivesithi esiqinisekisiweyo kunye namaqela ophando (iiyunithi zeklinikhi ezinikezelwe kwii-ASDs kunye nee-TNDs, iZiko le-CRA-Val de Loire, iyunithi ye-Inserm 1253), egubungela iinkalo zophando esisiseko, preclinical, zonyango kunye nezentlalo inzululwazi, amasebe yokuqala, ukuqhubeka kunye non-eyunivesithi, kwiziko lophando lwezonyango 1415.

  • Iziko lokuGqwesa kwi-Autism Spectrum kunye ne-Neurodevelopmental Disorder (InovAND) Iphethwe sisibhedlele iRobert-Debré, i-AP-HP kwaye iququzelelwe nguNjingalwazi Richard Delorme.

Izisa amaqela ahlanganisa yonke intsimi ye-TND kwaye axhomekeke kwisebe lesibhedlele saseyunivesithi, elidalwe kwi-2012 ukukhuthaza uphando kunyango olutsha lwengqondo ekhulayo (i-DHU PROTECT), inyathelo elidibeneyo le-AP-HP. , Inserm kunye neYunivesithi yaseParis. I-Inov-AND idibanisa ukugqwesa kweklinikhi (ukusuka kwiintsana ezisemngciphekweni we-TND kubantwana nakubantu abadala abachaphazelekayo), kwezemfundo nakwisayensi (i-Institut Pasteur, iziseko zoMgaqo, kunye ne-Prem-Up, Neurospin-CEA-Saclay, IPNP kunye neCermes 3).


Amandla amatsha avumela ukuvela kwezinto ezintsha "ezisetyenzisiweyo": iindlela ezintsha eziququzelela ubomi bemihla ngemihla babantu kunye nokuphucula ukufunda kwabo.
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Olu tshintsho lwenziwa lwenzeka ngokwenza zonke iinkalo kwaye abantu abachaphazelekayo basebenze kunye ukufezekisa izinto ezintsha ezenziwayo. ILebhu ephilayo kunye neLebhu yokuFunda zenziwe kwi-2019 ngokusebenzisana neYunivesithi yaseSorbonne. Iinjongo zabo: ukukhuthaza ukusebenzisana, ukulamla kunye nokujonga ukusetyenziswa kweeprojekthi kunye nezifundo ezinxulumene nokuzimela, ukufunda okanye ukukhula kwezakhono kwi-autism. UkuPhila ngokuFunda

ILebhu ihlanganisa, idibanise okanye idale amaqela ophando kunye neendawo zonxibelelwano nabantu abachaphazelekayo. Ikwaququzelela inkqubo yokuqinisekisa ukusukela kwiimeko ezilawulwayo zovavanyo kubomi bokwenyani. Okokugqibela, ichonga ixabiso leeprojekthi.


ICube: isixhobo esinyani sokwenyani soqeqesho kumaxesha ahlukeneyo obomi bemihla ngemihla
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Abantu abane-Autistic bahlala benobunzima obukhulu ekuqhubeni i-stimuli (ingxolo, izibane, iintshukumo, njl. Njl.) Kunye nokulawula utshintsho kwimikhwa nakwindawo esingqongileyo.

: umntwana one-autism angangena engxakini ngokukhawuleza xa esevenkileni, kwindawo yokuthenga, ipaki yolonwabo okanye, njengoko ootitshala besitsho, ngexesha lekhefu nabanye abafundi. Utshintsho oluqhelekileyo lwendlela okanye ukufika kwindawo engaqhelekanga kunokudala imeko yokungazinzi okukhulu.

Isixhobo esiphakanyiswe liziko leTyelelo leqela eligqibeleleyo sisebenzisa itekhnoloji yenyani yokuntywila (I-VR) ukwenza abantu ukuba basebenzise zonke ezi zinto. Isixhobo sinegumbi lokuntywiliselwa apho imifanekiso yevidiyo erekhodiweyo iqikelelwa kwi-180 °. Inkqubo yongezwa ngeseti yezixhobo zokulinganisa ukulandela ngokuthe ngqo iimpendulo zomntu. Izibonelelo ezilindelekileyo zinxulumene:

uhlengahlengiso olungcono lokuziphatha kubomi bemihla ngemihla, esikolweni, nangexesha lokuphuma kunye nokuphucula ukuzimela;

- ubuchule obungcono bokulawula imeko yeemvakalelo;

-Ukuba noxolo ngakumbi, noxolo ngakumbi kubazali, ngakumbi xa bekunye nomntwana wabo kwindawo ezikhuthaza kakhulu.

ICube yiprojekthi yeZiko lokuGqwesa le-Autism kunye ne-Neurodevelopmental Disorders zezibhedlele ze-CHRU zeTyelelo. Ukumiselwa nokuxhaswa ngezimali kwala maqela ophando sisiphumo somlinganiselo wama-90 wesicwangciso-qhinga sesizwe.


Ukudalwa kwentloko yezikhundla zeklinikhi kuvumela abaphandi abancinci ukuba baxhaswe ngemali ukuze baphuhlise iiprojekthi zophando kwicandelo le-autism kunye nokuphazamiseka kwengqondo kwi-neurodevelopmental.
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Amaqela ophando aseFrance ahlanganisene ngokwaneleyo; Kwakungxamisekile ke ngoko ukukhuthaza abaphandi abancinci ukuba baphuhlise amakhondo abo emisebenzi kwixesha elide kule micimbi.

Umlinganiso wama-91 wesicwangciso-qhinga sikazwelonke esibonelele ngendalo yezikhundla ezilishumi zomphathi weklinikhi ngo-2018.


Isifundo sokuhamba kwamehlo sinokuqikelela impendulo kwinkxaso yomntwana ngamnye
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Uphando lukaGqirha Alicia Cohen-Freoua, MD, iNtloko yeklinikhi-umncedisi

Iziko le-InovAND lokuGqwesa, elikhokelwa nguNjingalwazi Richard Delorme

Isibhedlele iYunivesithi yaseRobert Debré, AP-HP

Abantwana abanoluphazamiseko baneempawu ezahluka-hlukeneyo ngamanqanaba ngamanqanaba obukhali nefuthe kubomi babo bemihla ngemihla. Iindlela zenkxaso kwaba bantwana kufuneka zenziwe zenziwe zibe zezakho Ezinye ii-biomarkers zikhona ebantwaneni ngexesha lokuchongwa, njengobukho begazi, ubukho bohlobo lokuziphatha okanye lokuhamba kwamehlo okuthile. Oku kunokunceda ukuqikelela uhlobo lwenkxaso oluluncedo.

Ukulandelwa kwamehlo kweGaze Plot yindlela yophando evumela ukubonwa kweendawo zokulungisa (ukushukuma nokuhamba kancinci kwamehlo) kunye neesakhethi (ukushukuma okukhawulezayo), ukulandela umgaqo wokujonga kunye nokulandelelana kokufunyanwa kwezinto.

Imephu yobushushu ivumela ukubonwa kweendawo zokulungisa. Kufunyanwa ngokubeka ngaphezulu amanqaku okuncamathisela abantu abaliqela abathathe inxaxheba kolu phando. Iindawo ezinemibala etshisa (obomvu, orenji, tyheli) zibonisa iindawo ezilungiswe ixesha elide okanye eziphindaphindwayo.



IXABISO 2 - Ngenelela kwangethuba nabantwana abanezikhewu zophuhliso ezingaqhelekanga
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Ubungqina bomzali

Ukusukela ukuba intombi yam eneminyaka emithathu izuze ungenelelo olufanelekileyo, ndiyibonile yenza inkqubela phambili enkulu. Kwaye ziinyanga nje ezimbalwa ukuba indawo yokubona yaseRouen kunye neqonga longenelelo kwangoko belindixhasa… ”

Izindululo zenkqubo elungileyo yobuchwephesha evela kwiGunya eliPhakamileyo lezeMpilo zigxininisa ngokubaluleka kokuphunyezwa kongenelelo lwakwangoko, nje ukuba kurhaneleke ukuphazamiseka. Kude kube lelo xesha, umbutho wendlela yokhathalelo lwabantwana, ukusuka ekuchongeni ukuya ekuchongeni, awuzange uvumele ngokongenelelo ungenelelo lwakwangoko.

Kwakubalulekile ukubeka yonke imiqathango yokuchongwa kwangoko ziingcali kunye nemibutho ejongene nokukhathalelwa kwabantwana, ukuqaliswa kononophelo olukhawulezileyo, umbutho Isengqiqweni, ikhuselekile kwaye inamanzi indlela yokhathalelo lwakwangoko kunye nosapho solvency yokuxhasa ngoncedo lweengcali zenkululeko.


Bonke abaqeqeshi bemfundo yabasaqalayo ngoku banakho ukubona izithuba ezingaqhelekanga zophuhliso emntwaneni.
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Ukuchongwa kunye nongenelelo lwakwangoko kubalulekile ekuxhaseni abantwana abanengxaki yokuphazamiseka kwengqondo ukuze kuthintelwe ukukhula kwabakhubazekileyo. Indima yababizwa ngokuba "ngabaphambili" oogqirha, kunye nabo bonke abaqeqeshi abanxibelelana rhoqo nabantwana besebancinci, ibalulekile ekuphumezeni ukuchongwa kwangoko kweziphazamiso kunye nokwenza ngokukuko kuphuhliso lwabantwana. .

Ubungqina kagqirha

“Sisigqibo esinzima kuthi thina gqirha ukuxelela usapho ukuba umntwana wabo akakhuli kakuhle; Kusenjalo nanamhlanje kodwa kulula ukwenza eso sigqibo ngesikhokelo sokubona. "


Ukudala i "grid spotting" kunye nokude kubizwe ngokuba "kunzima" ukubonisana ngonyango, okuvumela oogqirha ukuba bachithe ixesha elininzi kuyo kwaye bahlawulwe ngcono.
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  • Ukusukela nge-11 kaFebruwari 2019, kwimeko yokurhanelwa kwe-TND emntwaneni, iingcali ngokubanzi kunye noogqirha babantwana banethuba lokuqhuba udliwanondlebe olude, babuyiselwe i-euro ezingama-60. Injongo yolu thethwano kukuxhasa umntwana nosapho kule nkqubo yokuqonda isifo, ukumqondisa ngokukhawuleza, ukuba kukho imfuneko, kulwakhiwo olunakho ukwenza uvavanyo olupheleleyo olujolise ekuqinisekiseni isifo kunye nokubeka ukumilisela ungenelelo oluyimfuneko emntwaneni.
  • Ukusukela ngoJulayi 2019 kwaye okokuqala eFrance, isikhokelo sendawo senziwe safumaneka kubo bonke oogqirha: wonke ugqirha oqhelekileyo, ugqirha wabantwana, ugqirha wezempilo koomama kunye nomntwana, ugqirha wabantwana okanye ugqirha wesikolo, ukufumana umntwana kothethwano, unesi sixhobo kwaye ke, ekunxibelelaneni ngokusondeleyo nosapho, ukulungisa iingxaki ekuhlangatyezwane nazo. Ulwabiwo luyaqhubeka kuwo onke amasebe apho amaqonga akhoyo.


Ukufunyanwa kwangoko kunye namaqonga ongenelelo ayavuleka ngokuthe ngcembe kwisebe ngalinye.
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Inkqubo yokungenelela kwangoko yenza ukuba kubhekiswe kubantwana abanengxaki yokuphazamiseka kwengqondo kwiqonga lokulungelelanisa.

Eli qonga liza kuququzelela ungenelelo olulungelelanisiweyo lweengcali ezininzi - i-psychomotor Therapists, i-psychologists kunye ne-Therapists kwezomsebenzi, ukongeza kubasebenzi abanesivumelwano-, ngokuhambelana neengcebiso ze-HAS. Olu ngenelelo kufuneka lwenze ukuba kube nokususa amathandabuzo okanye ukungenelela kunye nenkqubela phambili yokuqonda isifo ngelixa kuthintelwa ukukhubazeka okungaphezulu. Ukuqhelaniswa neqonga kufanele ukuba kube lithuba lokubonelela kwiintsapho ngendlela ekhuselekileyo kunye neyonakeleyo, ngelixa uziqinisekisa ngenkxaso yemali.

Ubungqina kugqirha wabantwana eGrenoble

“Bendiwenza lo msebenzi njengogqirha wabantwana ngaphezulu kweminyaka engamashumi amathathu kwaye besisilinde esi sixhobo iminyaka emininzi. "

33 Inkxaso kwangethuba namaqonga okuxilonga avuliwe.

Baya kuba yi-43 ngo-Septemba 2020.

2 077 abantwana abanamabala

1 627 iindlela zokhathalelo eziqinisekisiweyo

1 318 iipakeji ziqalisiwe

Umthombo: 30/06/19, amanani avela kuBathumeli

Amanye amasebe anamaqonga amaninzi, amanye amaqonga agubungela amasebe amaninzi kuxhomekeke kubume bale mimandla.

Oku kudibanisa amaziko okunyanga kwangoko amayeza-ezentlalontle (i-CAMSP), amaziko ezonyango-ezengqondo (i-CMP), amaziko ezonyango kunye nonyango lokufundisa (i-CMPP), imfundo ekhethekileyo kunye neenkonzo zokhathalelo lwasekhaya (SESSAD) ), uthungelwano kunye nezibhedlele ngoxanduva ngokudibeneyo lokuhlangabezana ngokufanelekileyo neemfuno zabantwana kunye neentsapho zabo, ngokuthobela izindululo zenkqubo elungileyo yokusebenza ye-HAS.


Ungenelelo lweengcali luxhaswa ngemali yi-inshurensi yezempilo. Ke iintsapho azisasebenzisi mali. Ukutyunjwa kwenziwa ngamaqonga ukuze uvavanyo kunye nongenelelo lwenziwe ngokukhawuleza kwaye kufutshane kangangoko kwikhaya lomntwana. Iintsapho zikhatshwa ngokwasengqondweni nakwiinkqubo zolawulo ukuba zifuna njalo.
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Iphakheji yokungenelela kwangoko yabekwa kwindawo ye-2019 kwaye yenza ukuba kube nokuhlawulwa iindleko zongenelelo ngoochwephesha abangasebenziyo: oochwephesha kwezonyango, iingcali zengqondo kunye neengcali zengqondo.

Imindeni akusafuneki ukuba ihlawule naluphi na uvavanyo kunye neeseshoni zongenelelo kwangoko kwiinyanga ezili-12 okanye ezili-18 emva kokuba ikhosi iqinisekisiwe. Iiphakheji ziyaguquguquka ngokweemfuno zomntwana. Amaqonga anika abazali kunye nabantakwabo isikhokelo, inkxaso yengqondo kunye noncedo kumgaqo-siseko wefayile ye-MDPH, ukuba kukho imfuneko.


Ngokuqinisekileyo, isebenza njani?
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Xa ugqirha wezempilo ophambili (ugqirha oqhelekileyo okanye ugqirha wabantwana) efumanisa imiqondiso emntwaneni ongaphantsi kweminyaka emithandathu ebonisa isifo se-neurodevelopmental disorder (umzekelo, ukuba umntwana akathethi ngeenyanga ezili-18, akalandeli Ngaphandle kokukrwaqula, akaphenduli igama lakhe lokuqala, akakhombisi umnwe, njl. njl.), Ukhokelela usapho kwindawo yokuqhelanisa nokulungelelanisa kufutshane nekhaya lakhe.

Iqonga licwangcisa ukumiliselwa kovavanyo oluyimfuneko kukhathalelo lwabantwana ngaphakathi kulo okanye namanye amaziko okanye iingcali ezikhululekileyo. Ikhosi yonke igutyungelwe yi-Inshurensi yezeMpilo, kubandakanya nongenelelo ngoochwephesha bezengqondo, abanyangi, abanyangi abasebenza ngokukhululekileyo, abo iimvavanyo zabo zazingabuyiselwa kude kube lelo xesha.


IXABISO 3 - Ukuqonda isikhewu sethu semfundo
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Ubungqina bomzali

"Wayenqatshiwe kwinkqubo, nokuba kunjalo, le nkqubo yayingamlungelanga ... Kwaye apho, sizifumana sikwinkqubo efuna ukusebenza naye, ngokumbandakanya ngokupheleleyo ..."

Ukukhuthaza ukufundiswa kwabantwana abane-autistic akusekho kwimibhalo esemthethweni kuphela, kodwa ngokwenza oko, le projekthi ibalulekileyo esiyilandelayo ngokwenziwa kweenkqubo ezininzi zokwamkela abafundi be-autistic.

Ekuqaleni konyaka wesikolo we-2019, ezi zilandelayo:

Abafundi abangama-39 abaneengxaki zokuphazamiseka kwengqondo kwi-autism (kubhengeziwe), okt i-131% yabafundi abakhubazekileyo abafundiswe kwizikolo eziqhelekileyo:

  • Ngama-25, 956 abafundi kwinqanaba 1 (okt i-13% yabo bonke abafundi abakhubazekileyo);
  • I-13 abafundi kwinqanaba le-175 (okt i-2% yabo bonke abafundi abakhubazekileyo).


Les Abantwana abane-Autistic banakho, ukusukela kwiminyaka emithathu ubudala, ukuba bafundiswe kwisikolo esiqhelekileyo, nabanye abantwana, kwaye baqale iindlela zemfundo zempumelelo.
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Lilonke, phakathi kowama-2018 nowama-2019, iiyunithi ezingama-54 zokufundisa ezintsha kunye neenkqubo zokuzilawula ezilishumi zavulwa kwizikolo zamabanga aphantsi nakwii-nursery.

Ekuqaleni konyaka wesikolo we-2020, siyakhawulezisa kunye neeklasi ezingama-73 ezitsha enkulisa, kumabanga aphantsi naphakathi. Kwiminyaka emibini, kuye kwavulwa ezinye iiklasi ezili-127 kummandla welizwe.

Ukwenza oku, inkxaso kwezemfundo inikezelwa ebantwaneni, esikolweni, liqela lezamayeza nezentlalo elisebenza ngonxibelelwano olusisigxina nootitshala nabo bonke abasebenzi besikolo (umlawuli, abasebenzi abaphethe inkantini kunye nabangaphandle, njl.).

Kukho into elungiselelwe wonke umntu kwaye isikolo siguqula ngokwenyani ukuze sibandakanye. Ezinye iikholeji zivula iinkqubo zokwamkela abafundi be-autistic ngokulungelelanisa umbutho wezi yunithi kulwazi lwemfundo yesibini.

Ubungqina bomzali

“Ekugqibeleni ndingabuyela emsebenzini! Ndinendawo kwisikolo esiqhelekileyo somntwana wam oneminyaka emine, ngokusisigxina, ndiyaphefumla kwaye ndikwazile ukufumana umsebenzi. "


Ootitshala bamkela abafundi be-autistic banokuxhaswa ukuze baqonde ngcono abafundi babo kwaye bahlengahlengise indlela yabo yokufundisa.
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Ootitshala bezixhobo zokusebenza bafakelwe ukuququzelela imfundo yabafundi abane-autistic.

Kwisebe ngalinye, isithuba setitshala oyingcali senziwe okanye sicwangcisiwe (51 ngo-2019 kunye no-49 ngo-2020) ukubonelela ootitshala abamkela abafundi be-autistic kwiklasi yabo ngengcebiso yokuqonda ubunzima babo kunye nokulungisa indlela yabo yokufundisa.

Ngexesha lonyaka wabo wokuqala wokuziqhelanisa, aba titshala bafumana uqeqesho oluthile lweeyure ezingama-200 kwiZiko leSizwe eliPhakamileyo loQeqesho noPhando kwiMfundo yaBantu abaDala abakhubazekileyo kunye nokuFundisa okuThunyelweyo (i-Inshea).

Ubungqina obuvela kutitshala wesikolo

"Ndifunde ukuhlengahlengisa imiyalelo yam, ukuyenza ngendlela ezolileyo, ukujolisa kancinci ..."

Ubungqina botitshala

“Ukuxhasa oogxa bethu, ngokusondele kangangoko kubukho babo eklasini, kubonisa ukuba ootitshala abaninzi basendleleni, bajonge kwaye bayasokola, ukufundisa abantwana abane-autism. "


Isikolo sisonke ngokudibeneyo siyazibophelela kutshintsho kwimfundo efundisa bonke abafundi: ukuphumelela.
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Ukuzilawula ngokwakho, okusetyenziswa eCanada, kuvavanywa kwiNew Aquitaine, ngoku kuyaphuhliswa eFrance. Yindlela elungileyo yokufundisa bonke abantwana. Autistic abantwana baseklasini nabanye kwaye baxhamle kwindawo, ngaphakathi esikolweni okanye kwikholeji, yezenzo zenkxaso ezijolise kukhuthazo, uxinzelelo kunye nokufunda izakhono zentlalo abazifunayo.

Isikolo sisonke ngokudibeneyo senza utshintsho kwimfundiso ezixhamlisa bonke abafundi esikolweni.

Ubungqina bomncedisi omkhulu wekholeji

Malunga nokuzilawula. Ndibona ulinganiso lokwenyani olujikeleze umsebenzi wokusebenzisana phakathi kweqela lezamayeza nezentlalo. Ukukhubazeka akusekho kuqhekeza, endaweni yoko, kuba ngumququzeleli wenkqubela phambili. "


Isikhokelo kunye nokufikelela kwimfundo ephakamileyo kwenziwa lula kubantu abancinci abane-autism.
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Unyaka nonyaka, abafundi abaninzi abakhubazekileyo bayabhalisa eyunivesithi: abafundi abaziswe ngcono ngamalungelo abo abasathandabuziyo ukuza kuthi bazise imibutho yabakhubazekileyo abakhoyo kwiiyunivesithi. Kodwa inani labafundi abakhubazekileyo limelwe kakubi kwiminyaka yesibini yeMasters, kwaye inani eliphantsi kakhulu lirekhodwa kugqirha. Oku kumelwa ngaphantsi kunkulu kubantu abane-ASD.


Ukwakha iYunivesithi yaseAspie-Friendly
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Bahlala bengabonakali okanye bengekho. Bane-autistic, abanako ukukhubazeka kwengqondo kwaye siyabafumana bebaninzi kakhulu kwiiyunivesithi. Nangona kunjalo sihlala sikude kwindawo ephawulweyo. Ujongene nale meko, uninzi lwamaziko emfundo aphakamileyo acwangcisela ukuthatha amanyathelo. Ngenkxaso ye-Interministerial Delegation ye-Autism kunye ne-TND, inkxaso-mali yeNkqubo yoPhando kunye neqela lamaqabane.

Ukufikelela kwabantu abane-autism kwimfundo ephakamileyo kuthatha isigqibo sokuphucula indlela yabo yokubandakanya kwaye ekugqibeleni ukufikelela kwabo kwingqesho.

Ukuphendula kolu luvo, inkqubo ye-Aspie Friendly yaqaliswa kwiminyaka emibini edlulileyo: uthungelwano lwabaphembeleli abazinikele ekwamkeleni nasekuxhaseni abafundi okanye abafundi bexesha elizayo abane-autism. Kukho abafundi abangama-359 abaxhaswe phantse kwiiyunivesithi ezingama-57 okanye kwizikolo ezizodwa kwilizwe liphela.

Iiyunivesithi ezininzi zizama ukusebenzisa kunye nokulungisa idiploma yokufikelela kwizifundo zaseyunivesithi (i-DAEU) ukuvumela abafundi be-autistic ukuba bafikelele kwimfundo ephezulu xa befumana ubunzima ekujonganeni neemviwo ze-baccalaureate. Ubambiswano luyaphuhliswa kunye nabaphathi ukuze baququzelele inguqu phakathi kwemfundo yesibini kunye nemfundo ephakamileyo. Iqonga lezixhobo zabafundi nootitshala (ukubeka izixhobo ezahlukeneyo, iividiyo, iikhosi zoqeqesho kwi-intanethi) ziyafumaneka kwiwebhusayithi: www.aspie-friendly.fr.



IXABISO 4 - Xhasa ubumi obupheleleyo kubantu abadala
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Ubungqina bomntu o-autistic

“Phambi kokuba ndikhatshwe, bendinobunzima ekufumaneni umsebenzi ndedwa, onxibelelene neempawu ezithile ze-autism. Ngokuqeshwa okuxhaswayo, ndakwazi ukufumana umsebenzi kwaye oko kundinceda kumanyathelo am entlalontle kunye nobungcali. Ukuba nomntu ofanayo olandelwe ngalo lonke ixesha kundinika ukuzithemba. "

Amanyathelo asetyenziswe kwisicwangciso esijolise ekuphenduleni kwiimeko ezahlukeneyo. Phakathi kwabo, abantu abadala abazimeleyo abafuna inkxaso elungelelanisiweyo ejongene nengqesho kunye nezindlu ukulungiselela ukubandakanywa okungcono kwezentlalo, kunye nabanye ukungabikho koxilongo kukhokelele kwinkxaso eyoneleyo ekufuneka bethathwe kuyo.


Inkqubo yengqesho exhaswayo iqinisekisa ukufikelela nokugcina ingqesho.
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Ingqesho exhaswayo yinkqubo edibanisa inkxaso yezonyango nezentlalo kunye nenkxaso ejolise kumdibaniso wobungcali wabasebenzi abakhubazekileyo. Ivumela ukuxhaswa ngokuguqukayo kwabantu ngabanye kunye nabaqeshi babo, bahlengahlengiswe kwiimfuno zabo, kwaye banokudityaniswa ngalo naliphi na ixesha ebudeni bezifundo.

Oku kukuqinisekisa ukufikelela, ukugcinwa kunye nophuhliso kwingqesho yabantu abakhubazekileyo.

Ukuyiphinda kabini le mali idityanisiweyo isuka kwi-2019 izibonelelo zabantu abane-autism.

Ukusukela nge-31 kaDisemba ngo-2019, i-21% yabantu abangena kwimisebenzi exhaswa iyahambelana nabaphulaphuli ekujoliswe kubo kwisicwangciso-qhinga sesizwe se-autism-TND:

  • Iipesenti ezili-11 zinengxaki yokuphazamiseka kwengqondo,
  • I-10% inengxaki yokuqonda / ukuphazamiseka kwengqondo kwi-neurodevelopmental.


Ithuba elitsha lokwenza i-GEMs ezinikezelwe kubantu abane-autism ivumela aba bantu badala ukuba bacwangcise ukubandakanywa kwabo ngokuncedana.
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Ummiselo kaJuni 27, 2019 usete inkcazo emitsha yamaqela okuncedisana (GEM) eyandisiweyo kuluntu oluqinisekileyo. Injongo, ngo-2022, yi-GEM autism kwisebe ngalinye.

Ii-GEMs yimibutho eyenziwe ngabantu abaneengxaki zempilo okanye iimeko ezifanayo zokukhubazeka. Zisixhobo sokudibanisa esixekweni, sokulwa ukwahlulwa kunye nokuthintela ukubekwa ecaleni kwabantu abasesichengeni esikhulu.

I-GEM ibonelela ngendawo yokuxhasana kubunzima ekuhlangatyezwane nabo, ngakumbi ngokubhekisele kwezentlalo, ubungcali kunye nokudityaniswa komphakathi. Phantse i-8 yezigidi ze-euro ngo-2022 ziya kunikezelwa kwi-GEMs.

Ubungqina bukaLaure Moser, Indlu yeAutism yaseMulhouse (MAM),

“I-GEM iyasivumela ukuba siphume emakhayeni ethu kwaye sibuye sizithembe kuba sinokuba zizinto zethu, ngaphandle kokuziva sigwetywa. Siziva sikhuselekile apho. Isivumela ukuba sitshintshisane nabantu ababelana ngobunzima bethu kwaye sincedane. Singazenzela abahlobo apho kwaye sidibane ngaphandle kwe-GEM ukuphuma siye kwikhefi, ukuze sibe namaqela nathi, umzekelo. Imisebenzi eyenziwayo apho ikuvumela ukuba wonwabe, wonwabe kwaye uphumle. Unokufumana uncedo kunye nenkxaso xa uyidinga. Ngamafutshane, kuyavakala apho! "

www.machunuma.lt


Ukuchongwa kwabantu abadala abangafumaniswanga, abakhoyo kumaziko ezonyango nakwezentlalo, sele kuqalile.
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Ekugqibeleni kuya kubakho ukubeka iimeko zenkxaso engcono.

Isicwangciso sikazwelonke sokuchonga abantu abadala abangafumaniswanga okanye abagunyaziswe ngendlela engeyiyo senziwe ngokusesikweni kumaziko ezonyango nakwintlalo yezempilo. Izixhobo ezibalulekileyo ezinikezelwe kweli nyathelo zijolise ekubeni zingasenzi isibhedlele indawo ehlala abantu.

Ukusuka kolu bhengezo kubantu abadala be-autistic, injongo kukumiliselwa, ngokuhambelana nezindululo zokuziqhelanisa nobuchule, ukhathalelo lomntu kunye nesicwangciso songenelelo esilungelelaniswe neemfuno zabantu kunye nomthombo ubomi obungcono. Ngoku sikwisigaba sokuqala salo msebenzi: sichonga inani labantu abachaphazelekayo kwaye sichaza iiprofayili zabo ukuze silungelelanise isibonelelo senkxaso. Kukusekwa kwezi zinto apho isicwangciso esiliqili somntu sinokuchazwa siqhutyelwe abantu abachaphazelekayo (ukulungelelaniswa kweprojekthi yokungenelela eyenzelwe umntu, ukuba kukho imfuneko yokuhlengahlengiswa kolunye ulwakhiwo, njlnjl.) Kodwa ngokubanzi isicwangciso. ukulungelelaniswa nokunikezelwa kwezempilo kunye nokunyanga.

Kwi-2019, kuqalwe imimandla emithathu yokulinga: iAuvergne-Rhône-Alpes, iNouvelle-Aquitaine kunye neHauts-de-France. Imimandla emitsha iyahlanganiswa ngo-2020 (i-Occitanie, i-PACA, iCorsica, iBrittany, iNormandy, i--le-de-France, iPays de Loire).

Ii-CRA zidlala indima ebalulekileyo ekuphunyezweni kwesi sicwangciso sesizwe sokuhlola. Iimali ezongeziweyo zanikezelwa ukusuka kwi-2019 ukomeleza ngokukodwa amaqela e-CRA esele enobuchwephesha ekuchongeni abantu abadala okanye ukuxhasa ukukhula kwamaqela abantu abadala ngaphakathi kwezinye ii-CRA.

Ayingombuzo nje wokuchonga ngokufanelekileyo nokuchonga abantu abadala abane-ASD, kodwa ngaphezulu kwako konke ukwenza izigqibo ngokulungisa ukhathalelo kunye neendlela zobomi.


Izindlu ezibandakanya wonke umntu ziba yinyani ebonakalayo.
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Ngezindlu ezibandakanya wonke umntu, zimalunga "nokuhlala ekhaya ngaphandle kokuba wedwa". Iiyunithi ezincinci-ezincinci zidibanisa indawo yokuhlala eqhelekileyo. Ezi yunithi zikhuselekile ngokweenkonzo, zivulekele ngaphandle kwaye zenze ukuba kube nakho ukumiliselwa kohlobo lohlobo losapho.

Ukwenza ukuba abantu abane-autistic baxhamle kwezi ndlela zokuhlala ngoku kunokwenzeka; Imibhalo yolawulo evumela uphuhliso lwezindlu ezibandakanya wonke umntu yapapashwa ngo-2019. Iiprojekthi ezintlanu ezithile zavulwa ikakhulu eluntwini nge-TSA-TND: ezimbini eBrittany, ezimbini eHauts-de-France, enye kwiPays de la Loire.

ENormandy, Iiprojekthi ze-16 zabantu abakhubazekileyo ezixhaswe nge-2019 zivulelekile kubaphulaphuli be-TSA-TND. IHauts-de-France, iZiko-Val de Loire, iNew Aquitaine, iBrittany, iNormandy, iPays de la Loire, i--le-de-France, iGrand-Est, iAuvergne-Rhône-Alpes, iingingqi ze-Occitanie sele kunye neBourgogne-Franche-Comté ziphuhlisa izikimu ezibandakanya izindlu.

Ukuze kuxhaswe abanini-mhlaba babucala nabasentlalweni ekulungiseni izindlu zabantu abane-autism, isikhokelo sobugcisa sidwelisa uhlengahlengiso ekufuneka lwenziwe kwizindlu eziza kwakhiwa.


Abantu ngoku bayazi apho banethuba lokuziqhelanisa nemidlalo kwindawo eqhelekileyo.
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Iwebhusayithi ethi www.handiguide.sports.gouv.fr yasungulwa ekupheleni kowama-2019. Inikezelwe ekufumaneni uqeqesho lwezemidlalo olufanelekileyo. Injini yokukhangela ibandakanya inqaku elinxulumene ne-autism. Yenza ubonelelo olufumanekayo lubonakale kwaye lubalaselisa ubuhlakani bendawo obukhoyo kwimimandla enemibutho ekhethekileyo. Intsebenziswano entsha esekwe phakathi kwamasebe kunye neeligi zemidlalo ibonisa ukuhlanganiswa kootitshala abanobuchule kunye nemibutho ehlanganisiweyo kwicandelo le-autism. Injongo ngoku kukuchonga bonke oochwephesha abaqeqeshwe kwi-autism kuloo mmandla kuwo onke amacandelo kunye nokwenza ukuba baziwe ngabantu kunye neentsapho ngokusebenzisa isandla.



IXABISO 5 - Xhasa iintsapho kwaye uqaphele ubungcali babo
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Ubungqina bomzali

“Ukuchongwa konyana wam kundivumele ukuba ndifundele ukukhubazeka kwakhe. Ngoku ndiyiqonda ngcono ukuba isebenza njani. "


Umxholo woqeqesho lwabo bonke abaqeqeshiweyo ujongwa ngononophelo ukuze kuqinisekiswe inkxaso esemgangathweni.
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Uqeqesho lolunye lwezinto zokumisela iinguqu kunye nokulungelelaniswa kweenkqubo zobuchule. Sifuna abaqeqeshi abakhatshwa kwaye baxhaswe ukuze, kuyo yonke indawo eFrance, bakwazi ukuxhasa uhambo lomntu ngamnye kunye neentsapho zabo.

Ukufezekiswa kwezenzo ezibandakanyiweyo kumgaqo-nkqubo woluntu we-autism kunye ne-TND kuya kwenzeka kuphela ngabaqeqeshi abaqinileyo kwicandelo labo lobuchule, bahloniphe izindululo zendlela elungileyo, ebhaliswe kumaqela ahlukeneyo eenkqubo kunye nothungelwano, kwaye ixhaswe zezi okokugqibela. Ukusukela oko yafakwa, i-Interministerial Delegation iqhubile nomsebenzi ojolise ekomelezeni umgangatho woqeqesho kubasebenzi bezempilo kodwa nakwezentlalo:

  • intsebenziswano engazange ibonwe ngaphambili kunye ne-Arhente kaZwelonke yoPhuhliso oluQhubekayo lobuNgcali (i-ANDPC), ejongene noqeqesho kubasebenzi bezempilo ukuphucula umgangatho woqeqesho olunikezelwa kwezi ngcali;
  • Uluhlu lweempahla kunye nohlalutyo loqeqesho olunikezelwa kuzo zonke iiyunivesithi (idigri yaseyunivesithi (DU) - idiploma yaseyunivesithi (i-DIU) kwicandelo le-ASD kunye ne-TND;
  • Iintloko ezingama-34 zeiyunivesithi zaseFrance ezimele zonke izidanga zeyunivesithi kwi-autism kunye ne-TND zadityaniswa ukuze zibonise uqeqesho lwazo kunye nokwenza iindlela zophuhliso ukomeleza umtsalane wezi zifundo zoqeqesho (ukogquma kwejografi, ukwanda kwinani leendawo , iindleko, ukufikeleleka kwidijithali, njl.);
  • Ukudala isatifikethi sesizwe sokungenelela kwe-autism kubasebenzi bezentlalo. Imizimba yokuqala egunyazisiweyo ukukhupha esi satifikethi iya kuchongwa ukuphela kwe-2020.


Iingcali zixhalabile ngamanyathelo oqeqesho esi sicwangciso, kuwo onke amabakala omsebenzi:
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• Ubuntwana;

• ezempilo, isibhedlele nenkululeko;

• oonontlalontle, oososayikholojisti, ootitshala;

• Oomantyi, amapolisa kunye nesini;

• Abasebenzi bezeMfundo kuZwelonke;

• iingcali kwimfundo yesizwe nakwezemfundo ephakamileyo;

• inkonzo yengqesho yoluntu;

• iingcali kwezemidlalo nakwezenkcubeko;

Kunye nabongi.


Nceda iintsapho ekuxhaseni umntu omthandayo.
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Isibhengezo sokuchongwa kwe-autism emntwaneni kubangela isiphithiphithi esinzulu kubomi babo bachaphazelekayo kunye nabo babangqongileyo. Kuyimfuneko ke ngoko ukuxhasa iintsapho kunye nabantu obathandayo abajamelene nemibuzo emininzi ephakanyiswe kukuvela kwezi ngxaki.

Kwiminyaka eliqela ngoku, uqeqesho lwabanonopheli lunikezelwa kwilizwe liphela ukukhusela umngcipheko wokudinwa kunye nokuba wedwa, kunye nokuxhasa kunye nokuhamba neentsapho. Eli nyathelo lesicwangciso-qhinga sesizwe se-2018-2022 sidityanisiwe kwaye saphuhliswa kunye nomnqweno wokubonelela ukufikelela kuqeqesho lwabanonopheli kuyo yonke intsimi ngendlela engaguquguqukiyo. Amanyathelo okwazisa amiselwe iintsapho kumasebe angama-78 ngamaziko oovimba be-autism phantsi kwesivumelwano phakathi kwe-CNSA ne-GNCRA.

Ezi ntshukumo zisisiphumo sentsebenziswano phakathi kwee-CRAs kunye nemibutho yosapho kulwakhiwo kunye nopopayi loqeqesho.

Amanyathelo ayaqhubeka ngoqeqesho oluhlanganyelweyo, uqeqesho lwabaqeqeshi kodwa kunye nophuhliso oluzayo lwesikhokelo sabanonopheli. Ezi zifundo zoqeqesho zisimahla kubathathi-nxaxheba ngenxa yemali yokuxhasa phakathi kwe-CNSA (80%) kunye nee-CRAs (20%).

Isivumelwano-sikhokelo esimalunga noqeqesho lwabanonopheli abangafundanga abantu abanoluphazamiseko satyikitywa kwiNgxowa-mali yeSizwe yoBumbano noZimeleyo (CNSA) ngenxa yokubandakanyeka nokuthunywa kwamaziko e-autism resource centre (CRA). kwicandelo lolwazi, ingcebiso, uqeqesho kunye nopopayi lobambiswano phakathi kwamaziko asebenza nabantu abane-autistic.

112 iiseshoni zoqeqesho ezilungiselelwe abathathi-nxaxheba abayi-1 ngo-693

124 iiseshoni zoqeqesho ezilungiselelwe abathathi-nxaxheba abayi-1 ngo-902

119 imibutho eqokelelwe kwi-2018

126 imibutho eqokelelwe kwi-2019

Ukoneliseka kwabathathi-nxaxheba:

  • Ama-63% aya okokuqala kuqeqesho lwe-ASD
  • 100% cinga ngokucebisa abanye abanonopheli ukuba bathathe uqeqesho.
  • I-98,5% yanelisekile ngoqeqesho oluye kulo.
  • + Iipesenti ezingama-90 bakholelwa ukuba olu qeqesho lwabenza bakwazi: ukubuqonda ngcono ubunzima babathandekayo babo, ukuququzelela ubomi babo bemihla ngemihla, ukuwaqonda ngcono amalungelo abo, amanyathelo ekufuneka ethathiwe kunye nokwenza ngcono ukhetho lwabo kwiindlela zenkxaso.

Umthombo: Uphando lokoneliseka kwe-GNCRA, 2018

Ubungqina bomzali

“Enkosi kakhulu kuqeqesho lwakho, noluncedo lokwenene kubazali nolubaluleke kakhulu ekuxhaseni abantwana bethu. "

Ubungqina bomzali womntu o-autistic

“Iiseshoni ezibini ezinikwe ziingcali zine-autism zezona zityebise kakhulu, zinomdla kwaye zinomdla. Njengomzali womntwana one-autism efunyenwe eneminyaka engama-20, ndakwazi ukuqonda ngaphakathi i-autism yomntwana wam. Enkosi ngokusivumela ukuba sidibane naba bantu babini bahle kakhulu abathe baqaqambisa umbono wethu wekamva. "


Umbutho ukwindawo yokunciphisa kakhulu inani labantu abalindele ukuxilongwa kumaziko oovimba be-autism (ARCs)
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Ii-CRAs zikhona kuyo yonke imimandla (ii-CRA ezingama-26 kwimetropolitan yeFrance nakwamasebe aphesheya kwezilwandle) kwaye zimele eyona nto iphambili kwinkqubo yokusebenza yokufumanisa isifo se-autism. Ukwahlukahlukana kokusebenza kwabo kunye neziphumo zabo, ngakumbi ngokwexesha elithathiweyo ukufikelela kuvavanyo, kukhokelele ukuGunyazelwa kwamaZwe ukuba aqalise imishini yokuxhasa ngo-2019. Izicelo ezilindileyo kunye namaxesha okulinda.

NgoSeptemba 2020, uhlahlo-lwabiwo mali oluyi-8,8 yezigidi luyakusasazwa phakathi kweearhente zempilo zengingqi ukuhlanganisa iingcali eziqeqeshwe kwisifo se-autism kwaye ngubani oza kuxhasa amaqela e-CRA akhoyo.

Ukuthintela ukwakhiwa ngokutsha kwemigca ngokukhawuleza, zonke ii-CRAs zenze izicwangciso zomsebenzi ezijolise ekuphuculeni ukusebenza kwazo ngaphakathi, ukulungisa iinkqubo zokuqonda isifo nokwandisa izakhono zabo bonke abaqeqeshiweyo '' Ukuseka isifo kulo mmandla wonke.


Umsebenzi uqalile ukuphelisa ukudideka phakathi kokuphathwa gadalala ngabazali kunye nokuphazamiseka kwengqondo.
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Ngaphantsi kwe-aegis yeAdrien Taquet, uNobhala welizwe ophethe aBantwana neeNtsapho kunye noGunyaziso lwamaZwe ngamaZwe, umsebenzi usungulwe neSebe loBumbano kunye neMpilo, abameli bemibutho, abantu abane-autism , amagosa anyuliweyo, oomantyi kunye neengcali zempilo. Lo msebenzi wenze ukuba kuchongwe iingcali ukuba zikhuthazwe okanye ziqeqeshwe njengezona zinto ziphambili ukuze zibazi ubukho bezi ngxaki ziphazamisayo kwaye ngenxa yoko ziphephe ukwenza iinkqubo ezingafanelekanga ngenxa yokungazi.

Oogqirha nootitshala sele bexhamla ekwaziseni nasekuqeqesheni, kwaye banokubonisana nezixhobo ezichaza ezi ngxaki kunye nokubonakaliswa kwazo. Isikhokelo seengcali ekufumanekeni kwezi ngxaki (ngakumbi i-autism, ukuphazamiseka kwe-DYS kunye nokuchaphazeleka kwengqwalaselo kunye okanye ngaphandle kokungasebenzi kakuhle) ziya kwenziwa zifumaneke kumabhunga amasebe nakoomantyi ukuze bakwazi, kwimeko yokuthandabuza, qalisa inkqubo yokuqonda imeko engxamisekileyo.


Ukuphuculwa kofikelelo kulwazi olusemgangathweni nakwizixhobo zengingqi zabantu ngabanye kunye neentsapho. Ngokudala i-Autism Info Service kunye newebhusayithi ye-GNCRA, oku kuyinyani ebonakalayo.
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I-Interministerial Delegation iphathise ukusekwa kwesikhombisi sezixhobo zasekhaya kwi-Autisme Info Service evela kulawulo lweTamis kwiziko lezixhobo ze-autism yase-Île-de-France (CRAIF). Ukusukela ngeyoMqungu ngo-2019, ii-Autisme Info Services ziye zaphuhlisa esi sikhombisi ngokucela iingcali ezahlukeneyo, imibutho, izakhiwo, njl. Ikwajonga izakhono (ikopi yediploma, izatifikethi zoqeqesho, imimiselo, isatifikethi seinshurensi, njl.njl.). Iingcali ezisebenzisa iindlela ezingacetyiswanga yi-HAS azinakubonakala kulawulo.

Iinkcukacha zeAutism Info Service:

  • Izalathiso ezihloliweyo nezingqinisisiweyo ezingama-827 ngoku ziyafumaneka kulawulo loluntu.
  • Ii-imeyile ezingama-2 zathunyelwa ukwenza olu lawulo.
  • Izalathiso ezongeziweyo ezingama-359 zilindele ukuqinisekiswa / ukupapashwa.

Amanani avela kuTamis, inethiwekhi yezixhobo ze-autism e--le-de-France:

  • I-477 ekhangelwe kwaye yaqinisekiswa izingqinisiso ngoku ziyafumaneka ku publicle-de-France lawulo loluntu.
  • Izalathiso ezongeziweyo ezingama-10 zilindele ukuqinisekiswa / ukupapashwa.

Inkonzo ye-Autism Info yinkqubo yasimahla neyesizwe yokumamela kunye nolwazi ngomnxeba nange-imeyile eyenza ukuba kube lula ukunceda kunye nokukhokela abantu abane-autism, abo babathandayo kunye neengcali ezisebenza nabo.

0 800 714 040 - https://autismeinfoservice.fr

Ukuqinisekisa ukufikelela kulwazi lomntu ngamnye kunye neentsapho, uNobhala Welizwe Wabantu Abakhubazekileyo kunye Nolawulo Lwabathumeli banikezela ngenkxaso yezemali kwi-AIS.

Iindaba ezingeyonyani, ukungazi ii-ASD, ukuqhubekeka kweenkolelo ngaphandle kweziseko zesayensi… zonke ezi zizizathu zokungoneliseki.

Kubalulekile ke ngoko ukuba umntu ngamnye kunye neentsapho zifumane ulwazi olufikelelekayo, oluhlaziyiweyo nolunokuthenjwa. Ukongeza kwizenzo zayo zolwazi oluqhelekileyo, i-Interministerial Delegation ithembele, kwizenzo zayo kwicandelo le-autism, kwiQela leSizwe lamaZiko oVimba we-Autism (i-GNCRA) ukusasaza ulwazi kwi-ASD.

Iqela lesizwe lisungule iwebhusayithi ngoJanuwari 2019. Izixhobo ngoku ziyafumaneka kwimixholo emininzi: ukufikelela kukhathalelo, ukuchongwa kunye nokuxilongwa, imfundo kunye nokudityaniswa kobungcali. Ukubonelelwa kwamanqaku olwazi ngongenelelo, inkxaso kunye nezifundo zobomi nazo zacwangciswa ngendlela

I-FALC ukuze ivumele abantu abaninzi kangangoko ukuba bafikelele kumxholo.

Iphepha elinikezelwe kuqeqesho lwabanonopheli abangaqeqeshekanga libonakalise le nkqubo yasimahla ilingwe yi-GNCRA ngokubambisana ne-Delegation, i-CNSA kunye nemibutho yosapho.

Iinkcukacha-manani zabatyeleli kwindawo ye-gncra.fr, ngo-Epreli 2020:

  • Abasebenzisi be-5 500
  • Ukujonga iphepha lama-80

Ukuphapha kunyango lobuxoki kwaye kugxilwe kwiindlela ezilungileyo (Iingcebiso ze-HAS):

gncra.fr/autisme/focus-sur-les-recommandations

Incwadana yeendaba kawonke-wonke ye-GNCRA: https://mailchi.mp/2989a4cb7e18/la-lettre-du-gncra-n5-4334191


Kuyakwenzeka ukuba ufumane umntu o-autistic onyamalale ngokukhawuleza. Ukwazisa nge-Autism kunye nokuqeqeshwa kwamapolisa kuya kuqhubeka.
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Ukulahleka komntwana okanye umntu osondeleyo one-autism okanye ukukhubazeka ngokwasengqondweni kukhathaza iintsapho ezininzi. Umsebenzi uyaqhubeka noMphathiswa Wezangaphakathi kunye neBhunga eliPhezulu loVavanyo ukuseka inkqubo ethile yokulumkisa eqinisekisa ukuhlanganiswa ngokukhawuleza kwamapolisa kunye nejele kodwa kwaneendaba zosasazo zalapha ekhaya xa umntu ene-autistic okanye ochaphazelekayo kukhubazeko lwengqondo luyanyamalala.


Ulawulo olunobuzaza lwamanyathelo kunye nokusetyenziswa kwamanyathelo kulungelelwaniso lwenkqubo.
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Ngomhla wamashumi amabini anesixhenxe ku-Epreli 27, i-Interministerial Delegation, ejongene nokongamela kunye nokuphumeza lomgaqo-nkqubo omtsha woluntu kwi-State Secretariat yaBantu abaKhubazekileyo, yadalwa ngenjongo yokwenza iqela elixineneyo, elijongene uququzelelo lwamacandelo, ii-arhente nabachaphazelekayo.

Umsebenzi wayo kule minyaka mibini idlulileyo ibikukuvelisa nokukhawulezisa ukuveliswa kwamanyathelo acwangcisiweyo ngokwolwazi, imigangatho, ulwakhiwo lweendlela kunye nezemali. Kungoko ke kungumbandela wokusebenzisana kunye nokuxhomekeka kubuchule kunye nemisebenzi yamanye amaqumrhu ukuwanceda, ngegalelo lobume bokulawula amalungu, ukunyusa nokukhawulezisa ukuthunyelwa Isicwangciso.

Ukwenza le mishini, i-Interministerial Delegation imisele imibutho yolawulo nezopolitiko ebandakanya bonke abachaphazelekayo: abantu, iintsapho zabo, imibutho yabo, iingcali, amahlakani eziko, ulawulo lwesizwe kunye nomhlaba, imibutho yophando, njl. Olu lwakhiwo lusisigxina luqinisa umsebenzi wethu kunye nokubonakaliswa kwethu ngamaxabiso axabisekileyo nanyanzelisayo.

La maqumrhu olawulo afakiwe kwaye ahlangana rhoqo ukusukela ngo-2018.

4 iintlanganiso zekomiti ejongene nobuchule phantsi kwe-Ofisi yeNkulumbuso

14 Iintlanganiso zekomiti eqhuba ukusebenza edibanisa abaqhubi beenqwelomoya abaqhubi bemilinganiselo yesicwangciso

10 Iintlanganiso zeBhunga leSizwe le-TSA-TND elihlanganisa imibutho kunye neengcali

12 amaqela asebenzayo ahlanganisa ndawonye iingcali, imibutho, abantu abazimeleyo kunye nolawulo lommandla nolwesizwe

8 Iintlanganiso ze-Autism kunye ne-ASD

Igqiza labaphathiswa elihamba liyokuhlangana nemibutho yeengcali kunye neentsapho.

  • Ukuhamba okungama-72, okt uhambo olunye ngeveki ukusukela ngo-Okthobha u-2018 ukuya kuSeptemba 2020
  • Abantu abangama-261 okanye iintsapho ezihamba ngqo neliGunya kwiingxaki ezifuna ungenelelo olukhawulezileyo kunye nolungelelwaniso olukhethekileyo lwezixhobo
  • Abantu abali-12 abachaphazelekayo kunye neentsapho eziphendule kolu thethwano kwiimpembelelo zesicwangciso-qhinga sesizwe



UKUHLANGANISWA KWE-6-CI-OVID-19: isiphithiphithi, umceli mngeni kunye nesantya
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Ubungqina bomzali womntwana oneminyaka esi-7 ubudala

“Unyana wethu une-autism spectrum disorder kwaye akathethi. Ngexesha lokuvalelwa, ngethamsanqa, saxhaswa kakhulu ngutitshala nangabo bonke abasebenzi bangaphandle. Xa ndicacisela inkwenkwe yam ukuba bonke aba bantu bacinga ngaye, iyenza incume. "

Sonke ngoku siyayazi: ingxaki esidlula kuyo inefuthe elomeleleyo kwezentlalo kunye neziphumo kubantu nakwintsapho nakwimibutho abayifaka kuvavanyo. I-COVID-19 ibe sisiphithiphithi, umceli mngeni kunye nesantya.


Ukusukela ekudalweni kwayo, i-Interministerial Delegation yakhe umbutho kunye nobambiswano oluvumela yonke imihla ukuguqula izibophelelo zibe yimpumelelo ebonakalayo. Ujongene nokuvalelwa kwesizwe, lo mbutho kunye nokusebenzisana kubonakalise ukuba bomelele kwaye bayasebenza. Babezinto ezingathandabuzekiyo ekuphenduleni ingxaki.
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(Izimvo)x

Ulwakhiwo lwentsebenziswano kunye nokunxibelelana kwabadlali bekungoko kuyeyona nto iphambili ekuphenduleni kwingxaki yezempilo. Njengabemi belizwe, abantu abane-autism, i-ADHD, inye okanye nangakumbi ukuphazamiseka kwe-DYS, okanye ukukhubazeka ngokwasengqondweni, baye bafumana ubunzima kubomi babo.

Kodwa eyokugqibela ngamanye amaxesha ibinemiphumela eyomelele ngakumbi apho i-Delegation ibeka malunga nokuphendula nawo onke amahlakani asebenzayo.

Iindlela zokusebenza ziye zatshintshwa kwangoko ngokunxibelelene nazo: iinkomfa zomnxeba, iinkomfa zevidiyo kunye neewebhsayithi zaphindaphindeka zaza zaququzelelwa liGunya okanye amaqabane alo. Abathunywa bathathe inxaxheba kuyo yonke ingxaki yesizwe kwaye bamisela umbutho othile oza kuchonga kwaye ujongane nayo yonke imibuzo ebuzwa mihla le ziintsapho nabantu ngabanye. Waye wahlanganisa zonke iinkonzo, ngakumbi ngokutshintsha yonke imihla kunye nemibutho yosapho kunye nemibutho yezobuchwephesha kubunzima ohlangane nabo.

Abaphathi bakarhulumente kunye nabaqhubi bazenze bafumaneka ngokungxamisekileyo ukuphendula izicelo: ukuveliswa kwemigaqo elungiselelwe imeko yeengxaki, ukuveliswa kolwazi, ukusekwa kwe-FAQ yemihla ngemihla kwiiveki zokuqala ukuvalelwa.


Uhlengahlengiso lwezinto eziphambili ngokubaluleka zenzeka ngaphandle kokulibazisa. Kuwo onke amanqanaba kunye namacandelo obuchwephesha, ukuhlanganiswa akukaze komelele kwaye kube mkhulu ukuphendula kwimeko zonxunguphalo zabantu kunye neentsapho.
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(Izimvo)x

Ubuhlakani bommandla obusebenzayo: uninzi lwabadlali bezonyango kunye nentlalontle, kuyo yonke loo ntsimi, baye bahlangana kwaye babonisa ubuchule obukhulu kunye nobuchule. Usuku lwe-Autism Lokuqwashisa ngehlabathi lubanjwe nge-2 ka-Epreli kule meko ithile yobunzima bezempilo. Ngesi sihlandlo, uMongameli weRiphabhlikhi wayefuna ukuthetha. Ngaphandle kolwazi oluvunyelwe yile ntetho, umyalezo wayo, ngokunika ukuphumla kweemeko zokuphuma, ibonakalise ngokucacileyo ukwamkelwa kwezidingo ezithile zeentsapho nabantu abachatshazelwe yi-autism kwelona nqanaba liphezulu Urhulumente.

Unyango olukhawulezileyo lweemeko ezinzima ezithunyelwe kuThunyelo ziintsapho kunye nemibutho yayixhalabisa yonke imihla, iintsuku ezisi-7 ngeveki, kusetyenziswana ngokusondeleyo neearhente zempilo zengingqi kunye namakhaya amasebe abantu abakhubazekileyo. Ukunxibelelana ngqo nabantu kunye neentsapho ekunzima kakhulu ngamanye amaxesha kuye kwabalulekile; inkonzo yenkxaso yengqondo yabantu abadala abanesifo se-autism yenziwe yasebenza kwinethiwekhi yamaziko oovimba be-autism: phantse abantu abali-7 balandelwa ngokweendlela abazikhethele zona, nokuba kukuhamba rhoqo okanye indlela yoqhakamshelwano (ngomnxeba) okanye ngeposi rhoqo).

Inkonzo ye-Autism Info yaqiniswa ziingcali ezivela kwi-GNCRA kunye ne-CRAIF kunye neephuli zabaqeqeshi bokuzithandela (ngakumbi iingcali zengqondo, oogqirha bengqondo noonontlalontle): yiyo loo nto iqela eliqinisiweyo likwazile ukuphendula iminxeba eyi-1 kunye nokwenza ii-imeyile ezingama-841 ngoMatshi, UTshazimpuzi noMeyi 567. Imisitho "yeFacebook bukhoma" nayo yaququzelelwa ukuhlangabezana neemfuno zabantu kunye neentsapho: USophie Cluzel, uClaire Compagnon kodwa noSandrine Sonié, olungelelanisa ugqirha we-CRA Rhône-Alpes. Iintlanganiso zeveki zikaNobhala Wombuso kunye nemibutho elawula amayeza-ezentlalo zenzeka ngokuthatha inxaxheba kweGqiza ukuvumela ukukhawulezisa ukukhawuleza kobunzima kwaye ngaloo ndlela kulungelelaniswe iimpendulo zolawulo kunye nohlahlo-lwabiwo mali.

Umyalezo ovela kuMongameli weRiphabhlikhi u-Emmanuel Macron oya kubantu abane-autism.

April 2 2020

“Ngu-Aprili 2, sinxibe oluhlaza okwesibhakabhaka kwaye ndicinga ngawe. Abanye benu bahlala bezivalele emakhayeni abo bunzima. Ndiyayazi. Ndiyazi ukuba oko kukuzinzisa ngokunzulu kwaye ngamanye amaxesha kuphakamisa uxinzelelo, unxunguphalo ongenako ukuluthwala kwaye kunzima kuwe nakwabo ubathandayo. Ke bendifuna ukukuxelela ukuba mkhulu kakhulu umsebenzi owenziweyo, kwaye ndineendaba ezimnandi kuwe: uyakukwazi ukuphuma kancinci rhoqo nesatifikethi esiza kwenzelwa wena ngokukhethekileyo ... Kuba ndiyazi ukuba mandithini ngamanye amaxesha iindawo ezithile ezizezakho ukuze ukwazi ukuphuma kancinci zibaluleke kakhulu kuwe nakwabo ubathandayo. "


Amandla okugaya ancamathele kwinto yokuba ubomi buqhubeka. Amanyathelo aphunyeziweyo lonke luluvo lokuhlangabezana, nokuba kungangomso, iimfuno zabantu kunye neentsapho.
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(Izimvo)x

I-Teleconsultation yathunyelwa ngokukhawuleza okukhulu, njengoko kwapapashwa iitekisi zolawulo. Ezi zixhobo ziye zanceda ukusekwa kwezonyango kunye neenkonzo kunye neengcali zenkululeko ukuba zihlale zidibana neentsapho kunye nabantu. Ungenelelo lwasekhaya luququzelele unxibelelwano phakathi kweengcali kunye neentsapho, ngaloo ndlela zomeleza ukuqonda kweengxaki ekuhlangatyezwane nazo. Umbutho wokuphumla (umzekelo yi-ARS IDF kwi

I-Normandy, eMantla, njl. Njl.) Yavumela iintsapho ukuba ziphefumle.

Isixhobo esaziwa kwilizwe liphela i-Triple P senziwe sasebenza ngabazali abangama-7. Abathunywa abathethathethwano bathethathethane ngokwamkelwa simahla kuzo zonke iintsapho. Umbono yayikukubonelela ngenkxaso ethe ngqo kubazali ekhaya kusetyenziswa ujongano lwewebhu. I-Triple P sesinye sezixhobo ezinokubakho ekukhokeleni abazali kuyo nayiphi na intsapho. Kwixesha elide, ingxelo ngokusetyenziswa kwesi sixhobo ngabazali iya kwenza ukuba kube nakho ukwenza ngcono ukubonelelwa kwesikhokelo sabazali kwindawo yokuphazamiseka kwengqondo.

Ubungqina bengcali yokuthetha kwi-teleconsultation eParis

"Njengengcali yokuthetha, oko kukuthi ingcali yezempilo, kubalulekile ukuqhubeka nokuvuselelwa kwethu kude. Oku kusivumela ukuba sigcine ubudlelwane bezentlalontle kwaye sihlale siyinxalenye yomntu oqinisekisayo. "

Ubungqina botata womntwana bamkelwe ngexesha lokuvalelwa

“Ivumela uGabriel ukuba abaleke. Lixesha lokuphumla elisivumela ukuba sibambelele, hayi ukuwela kuxinzelelo okanye ukudinwa kokuziphatha. "


Kuba kwakubalulekile ukuba kungashiyi mntu yedwa xa bejongana nemibuzo yabo, inkxalabo yabo kunye namaxesha athile aphikisanayo olwazi, Abathunywa baququzelela imveliso enkulu yolwazi / yokwazisa. Izixhobo ezininzi kunye nenkqubela phambili eya kuthi isebenze kwikamva.
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(Izimvo)x

Olu lwazi luphunyezwe ikakhulu kubantu ngabanye kunye neentsapho zabo, kodwa ikwenze ukuba kube lula ukukhuthaza bonke abantu baseFrance.

Unxibelelwano oluninzi lwenziwe ukucacisa iimfuno ezithile zabantu.

Ngokukodwa, oku kulandelayo kwaqhagamshelwana nokwaziswa malunga noku:

- iivenkile ezinkulu zikhumbuza ngokukhawuleza isicelo sokuxolelwa ekunxibeni imaski kunye nokuqinisekisa abazali ngethuba lokuthenga nabantwana babo;

- amapolisa ukuququzelela ukukhangela ngexesha lokuphuma;

Oomasipala ukukhuthaza ukuvulwa kweepaki kunye negadi- nesixeko saseParis ekuvulekeni kweParc de la Villette kunye ne-Saint-Denis ukuxhasa ukuvulwa kweParc de la Légion d 'imbeko;

-Amashiti amaninzi asebenzayo kunye nezikhokelo ngoku ziyafumaneka: https://handicap.gouv.fr/autisme-et- troubles-du-neuro-developmentpement / infos-speciales-coronavirus /

-Imibuzo ebuzwa rhoqo ebhaliweyo ngexesha lesikhongozeli kunye nokususwa kwesigqibo sikwenza ithala leencwadi elinokuphinda lisebenze nangaliphi na ixesha.

Ukuveliswa kweenkxaso ezininzi, ngendlela ekhawulezileyo, kuye kwenza ukuba kube nokufumaneka kwezixhobo ezinokusetyenziswa ngendlela ezinzileyo, nokuba zimalunga nezindululo kwinkonzo yexesha likaxakeka, amashiti okunxiba imaski kunye nezithintelo iindaba ezingakumbi.



IXABISO 7 - Idatha yohlahlo-lwabiwo mali
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(Izimvo)x


Ukuqonda ukuxhaswa ngezimali kwesicwangciso sesizwe se-autism kwii-TNDs
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(Izimvo)x

Ngaphezulu kwezigidi ezingama-344 zeerandi ezintsha zihlanganiselwe ukuphumeza isicwangciso esivela kwi-2018 ukuya kwi-2022.

Ezi khredithi ziwela kwizigaba ezintathu:

  • Iikhredithi ezihlaziyiweyo: zizezisisigxina kwaye ziyahlaziywa ukusuka kunyaka omnye ukuya kolandelayo ukusuka kwi-2018 ukuya kwi-2022, ukusuka ekungeneni kwabo kuhlahlo-lwabiwo mali;
  • iikhredithi ezingavuselelekiyo: zitofuwe kube kanye kwisithuba se-2018 ukuya kwi-2022;
  • iikhredithi ezihlanganisiweyo: ziyinxalenye yezixhobo zokusebenza ezikhoyo kubaphathiswa kwaye azibonakali kweli nqanaba kodwa ziya kuqingqwa ngokukhawuleza kwaye oko kuyakwandisa uhlahlo-lwabiwo mali lokuqala lwesicwangciso.

Imithombo emibini ephambili yenkxaso-mali:

  • uhlahlo-lwabiwo mali kurhulumente phantse kwi-64 yezigidi;
  • I-Ondam (iithagethi zenkcitho yeinshurensi yezempilo kuzwelonke) ngaphezulu kwe- $ 280 yezigidi.

Qaphela: iimvulophu ezithile zomsebenzisi ziye zagunyaziswa ukuba ziye kwelinye okanye kwenye imithombo yenkxaso-mali.

Amanye amanyathelo ahlanganisa yomibini imithombo yenkxaso-mali, umzekelo:

  • iiprojekthi zesikolo: ukuhlanganisa uhlahlo-lwabiwo mali lukaRhulumente kwicala leMfundo likaZwelonke nakwi-Ondam yezamayeza nezentlalo;
  • Iiprojekthi zophando: ukuhlanganisa uhlahlo-lwabiwo mali lophando, iinkqubo zotyalo-mali zexesha elizayo kunye namaziko ezempilo e-ONDAM;
  • Iiprojekthi zokuchonga abantu abadala: ukuhlanganisa amaziko ezempilo e-Ondam kunye ne-Ondam yezonyango.


Ukwahlulwa kokuzibophelela kwenkxaso-mali eyabiweyo
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(Izimvo)x

Abathunywa abaphethe ngenkxaso yezolawulo nabasebenzi bakarhulumente bajongene nokubeka esweni uhlahlo-lwabiwo mali.

Ukubeka esweni ukwenziwa kohlahlo-lwabiwo mali lwesicwangciso kwenza ukuba kube nakho ukubona inkqubela yokuphunyezwa kwamanyathelo okuzibophelela ngakunye:

  • Ukuzibophelela 1 "kubuyisela isayensi entliziyweni yomgaqo-nkqubo woluntu ngokunika iFrance uphando olugqwesileyo": iinjongo ziyafezekiswa okanye zigqithisiwe kwi-90% yamanyathelo.

Ukulibaziseka komlinganiso ophathelene nokudalwa kweqela elikhulu (umlinganiso onobunzima obubaluleke kakhulu bezemali kunye nolwabiwo lwe-6 yezigidi zeerandi) kuchaza ukusetyenziswa gwenxa kweekhredithi ezinikezelwe koku kuzibophelela.

  • Ukuzibophelela 2 "ukungenelela kwangethuba kunye nabantwana abaneyantlukwano ekukhuleni": Ngokufanelekileyo, isigaba sokuqala senkcitho sanikezelwa ekufakweni nasekwakhiweni kwamaqonga (iikhredithi zisetyenziswe ngokupheleleyo). Inkqubo yokuyilwa kwamaqonga amatsha acwangciselwe i-2020 yacothiswa yingxaki yezempilo.

Kuya kufuneka ngoku ikhawuleze phakathi kwangoku kunye nasekupheleni kuka-2020 nango-2021, eya kuthi ikhokelele ekuchongweni kwabantwana kunye nasekuhlanganiseni iikhredithi ukuxhasa iipakeji zongenelelo kwangoko.

  • Ukuzibophelela 3 “ukufumana isikolo”: iinjongo kugqithisiwe kuzo.

Amanyathelo anxulumene nokudalwa kwee-nursery kunye neeyunithi zemfundo yamabanga aphantsi ziye zahlanganisa i-5 yezigidi ngaphezulu kwezahlulo ebezicwangcisiwe, ngaloo ndlela zanelisa umnqweno wokuqhubela phambili nokuphucula iinkqubo zokuqala.

  • Ukuzibophelela 4 "ukuxhasa ubumi obupheleleyo babantu abadala": ukuqiniswa okuqinileyo kweekhredithi ezinikezelwe kwingqesho exhaswa, ukusekwa kwamaqela okuncedisana, ukufikelela kukhathalelo lwempilo kunye nezindlu ezibandakanya wonke umntu zichaza inqanaba lenkcitho oku kuzinikela. Ukuququzelelwa kolwabiwo olwenzelwe ukuthintela ukuhamba kwabantu abadala eBelgium kuqalile kwaye kufuneka kunyuke ngoku.
  • Ukuzibophelela 5 "ukuxhasa iintsapho": ukusetyenziswa kwebhajethi koku kuzibophelela kuxhaswa ngokubaluleka ngoqeqesho lwabanonopheli.
  • Inkxaso mali eyabelwe le minyaka mibini ifikelela kwi-155 yezigidi ze-euro.



Uluhlu lwamagama

I-AP-HP: Uncedo loluntu kwizibhedlele zaseParis

I-ARS: Iarhente yezempilo yengingqi

I-CAMSP: Iziko lezenzo zentlalontle kwangethuba

I-CEA: Ikhomishini yezaMandla eNyukliya yaseFrance kunye neKhomishini yamanye amaNamandla

I-CHU: Iziko lesibhedlele saseYunivesithi

I-CHRU: iZiko leSibhedlele leYunivesithi

I-CMP: Iziko leMedico-psychology

I-CMPP: Iziko lezemfundo iMedico-psycho-education

I-CNSA: INgxowa-mali kaZwelonke yoBumbano kunye nokuzimela

I-CRA: IZiko leZibonelelo zeAutism

I-CRAIF: IZiko leZibonelelo ze-Autism yase--le-de-France

I-DOM: ISebe laphesheya

I-DYS: iDyslexia, iDyspraxia, iDysphasia, iDyscalculia, iDysorthography

I-GEM: Iqela lokunceda

I-GIS: Iqela elinomdla ngokwenzululwazi

I-GNCRA: Iqela lesizwe lamaziko emithombo ye-autism

HAS: Igunya eliphezulu lezeMpilo

INRA: Iziko leSizwe loPhando lwezoLimo

Inserm: Iziko leLizwe lezeMpilo noPhando lwezoNyango

Ukungenisa: Iziko eliPhakamileyo leSizwe loQeqesho noPhando lwezeMfundo

abantu abancinci abakhubazekileyo kunye nemfundo ehlengahlengisiweyo

MDPH: Indlu yesebe yabantu abakhubazekileyo

I-Ondam: Inkcitho yenkcitho kwi-inshurensi yezempilo

IPAP: Isicwangciso senkxaso esenzelwe wena

SESSAD: Imfundo eyodwa kunye nenkonzo yokhathalelo lwasekhaya

I-ADHD: Ingxaki yokusilela kwengqwalaselo kunye okanye ngaphandle koxinzelelo

I-DID: Ukuphazamiseka kwengqondo kuPhuculo

I-TND: Ukuphazamiseka kwengqondo kwi-Neurodevelopmental disorder

I-ASD: Isifo seAustism Spectrum Disorder

I-UEEA: Iyunithi yokufundisa kwi-autism yokuqala

I-UEMA: Icandelo lokufundisa iAutism kindergarten

5 2 iivoti
Ixabiso leSiqendu

Isibuyekezo sokugqibela: 07 / 10 / 2020

07 / 10 / 2020 49 Isiza_Admin UAH_OrgIntl, I-AA_OrgIntl_ONU-CDPH, I-AllianceAutiste.org
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Ukuba ufumanisa kule nto yokubhaliweyo oyifumana iluncedo kwiNgxelo ye-Autist Alliance ye-CDPH Committee malunga ne-French State, nceda wenze igalelo lakho ngolu hlobo lulandelayo: Cofa kwi "bubble" okuluhlaza (ukuba kukhona) kwisicatshulwa ukunika uluvo kwinxalenye ehambelana nayo, OKANYE phendula kumagqabaza asele ekhona emazantsi ephepha, uzama ukufumana umsonto wengxoxo kwinxalenye efanayo yokubhaliweyo, OKANYE, ukuba akukho mntu Sele iqalile ingxoxo ngesihloko esinye, yenza uluvo olutsha ebhokisini... Funda ngokugqithisileyo "

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